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Make certain medication choices work for you
Vicki Rackner, M.D.
The older gentleman sitting next to me on the plane said in a confessional tone, “I would really rather not take all this medicine.”
This fellow-traveler, who I’ll call Jo, had just witnessed me administer CPR during our flight from Seattle to Los Angeles to a middle-aged passenger whose heart, thankfully, restarted. In a very human response to a dramatic event, Jo told me his story.
Jo had been healthy all his life when he suddenly got sick several years ago. He was hospitalized and even spent several days in the ICU. Although his doctors aren’t certain, they suspect a virus caused this illness, infecting many organs including Jo’s heart. Jo said he was scared he might not survive; fortunately, he made a complete recovery. The doctors prescribed four medications “as an insurance policy” against a recurrence that Jo has taken faithfully for years. Jo said the medical emergency on the plane reminded him that he cannot take his health for granted.
I thought Jo finished telling me his story, so I reached for my book. That’s when Jo mentioned his concern about taking medication.
Jo said, “I don’t like taking it. I don’t even know why I’m still on it!”
I asked, “Did you ask the doctors whether stopping is an option?”
Jo replied, “Yes, my doctor says, ‘It isn’t doing any harm, so let’s just continue.’”
Jo and his doctor may not understand that they define harm in far different ways. For the doctor, harm means impairing the way Jo’s body works. For Jo, harm also means impairing the way his life works. Jo says that the medication adds a financial burden, the stress of one more thing to do and a daily reminder he was sick.
Making a medical choice is like balancing the scales of justice. When considering whether to take a medication or undergo an operation or get a full-body screening CT scan, you weigh the benefits against the risks. One side of the scale holds the possible ways the intervention helps, and the other side holds the potential harm.
Many patients identify with Jo’s position of second-guessing medical choices. This usually happens when patients have not placed all their considerations on the scale.
Here are some factors that you may weigh more heavily than your doctor.
Your doctors will not know how treatment affects your life unless you tell them. Most patients are like Jo. They remain silent about the impact of medication on the quality of their lives. The failure of patients to speak up may help explain why only about half of patients take medication as prescribed.
I suggested that Jo say to his doctor, “You prescribe the medicine as an insurance policy. We don’t know what kind of protection it offers because we don’t even know why I got sick! It costs $60 a month and adds stress to my life. But I pay the biggest price when I look in the mirror and see a sick person who takes lots of pills. I want to go off the medication, and I’m willing to take a calculated risk. What do you think?”
Right now Jo takes the medicine because his doctor tells him to. This new discussion offers both Jo and his doctor a way to put new concerns on the scale. Jo and his doctor may conclude that taking the medication is the best choice. Even if the plan remains the same, it will be different for Jo. He will take the medication because it’s his informed choice.
You have an important part in medical decision-making. It can take great courage to tell your doctor what’s important to you. Please do it. Ultimately, the best choices for you reflect how treatment affects your body and your life.
Vicki Rackner M.D. can be reached at www.Dr.Vicki.org.